DataCollection@AnaMaria.Org

The Email Addresses:

Email Address:	Used to correspond about:
MH.DataCollection@AnaMaria.Org	Mental Health
DD.DataCollection@AnaMaria.Org	Dual Diagnosis
PH.DataCollection@AnaMaria.Org	Physical Health
SC.DataCollection@AnaMaria.Org	Social Care
CA.DataCollection@AnaMaria.Org	Carers
Justice.DataCollection@AnaMaria.Org	Any other justice seeking that does not fall into the above categories
PW.DataCollection@AnaMaria.Org	Professional Witnesses

ADD THIS FOOTER MESSAGE INTO EVERY EMAIL YOU COPY US INTO:

The Ana Maria Foundation, Registered UK Charitable Company Number: 13630819, have been copied into this correspondence. They are collecting independent data regarding the legal, ethical and moral conduct of the NHS and other government funded key stakeholders. The Foundation endeavours to prove that the systems do not uphold current legislation and that an illegal system must be reviewed and remedied with as swift and effective a parliamentary response as that shown to be possible during the more recent Covid Pandemic.

MH.DataCollection@AnaMaria.Org – for Mental Health related correspondence.

All matters pertaining to your own or a loved one’s mental health decline and treatment needs. Copy us into any emails requesting an effective treatment and recovery plan or a safe discharge (remember, a safe discharge requires that there is treatment into a form of recovery, that recovery is supposed to foreseeably continue with success, which means that sound medical evidence is required to support the supposed ‘fact’ that a patient is already in a form of stable, sustainable recovery before the day they are sent to fend for themselves in the community – report any unsafe discharges here). Let us prove the unsafe discharges, let us document in photos, audio recordings and even videos, the decline of our loved ones, as well as our own, let us name the negligence in real time in emails and prove the ‘zero-response’ protocols in place in NHS Mental Health Foundation Trusts. Let us prove that deaths have occurred as a result of this institutionalised negligence in the past too. Let no invisible, vulnerable person’s name go unspoken, let the dead, the dying and those who will die in the future be seen through these emails. Let them suffer the silence of medical ignorance and abandonment no longer!

DD.DataCollection@AnaMaria.Org – for Dual Diagnosis related correspondence.

Dual-Diagnosis is the medical term for the diagnosis of one or more mental disorders that present alongside addiction. That can mean chronic depression, a primary illness presenting with psychosis, such as schizophrenia and bipolar, or even just acute anxiety. It is fair to say that much dual-diagnosis develops as a result of misinterpreted traumas and stressors in the body that go unhealed, self-medicating is common and can take the form of a few beers at night, or a joint after work. Escalation of the mental health will of course exacerbate the addiction, that is to be expected and is a logical consequence to untreated internal pain. It is common to see a patient with dual-diagnosis belonging to no responsible, experienced, trained medical or social-care body. A patient will be referred to the NHS, who tells their client to seek help for their addiction before they will help them. Then the patient goes to community addiction recovery services, who deem someone with active psychosis or chronic and complex depression too complicated for them to handle or help in any way. This is the common story, not an anomaly. This Limbo takes lives!  The Mental Health Act (1983) states that when a complex mental health disorder cannot be treated successfully without the addiction being simultaneously treated ALONGSIDE the disorder, then both must be treated at the same time. The thing is, there is only ONE dual-diagnosis specific hospital in The UK equipped to treat a patient detained for treatment under The Act, Sinoue Nightingale Hospital in London, and it costs £20,000 a month. When one looks at their programme, how well designed it is for a dual-diagnosis treatment success stories, then one turns to NHS service provision and feels the gaping void that is NO EFFECTIVE DUAL-DIAGNOSIS INPATIENT TREATMENT FACILITIES, well, one begins to question the legitimacy of the law and the government who claims to uphold it through the dissemination of policy, codes of practice and procedure monitoring. Laws are broken daily, many dual-diagnosis patients are discarded and discharged unsafely from A&E with untreated and still very active psychosis. Report any such occurrence here. Common practice is to label the patient with ‘drug-induced psychosis’, while ignoring patient history and the voice of the family and carers. Evidentially, unchecked prejudice prevails and threatens many vulnerable people’s lives daily in the UK. Too many dual-diagnosis patients will never get to see the inside of an acute mental health ward, let alone a facility able to treat them into a form of recovery as a complex patient (remember, it doesn’t exist for the working and middle classes) because of stigma, bias and outdated treatment paradigms. At the crux of the matter, this is all about inequality of access to quality, wholistic healthcare and a safe discharge, that which is already a legislated right, but is yet to be formalised and regulated for the safety and welfare of people with complex psychosis and addiction. This inequality need only be assessed by looking at what is available at Sinoue Nightingale Hospital and then turning the to NHS and asking what they can deliver to UK Citizens, those equally deserving of such a shot at successful dual-diagnosis treatment outcomes.

PH.DataCollection@AnaMaria.Org – for Physical Health related correspondence.

My friend’s young niece was very unwell, for 18 months the NHS tried to investigate the problem. In other words, she had a series of rushed 10 minute appointments that resulted in shoddy referrals to NHS rooms that found nothing of consequence. The last doctor told this poor girl’s mother that the young patient was imagining things and that it was in her daughter’s head. The mother knew something was wrong and so took her child to a private doctor’s surgery, in three days they determined that this child had an allergy to fructose, which is in so many supermarket sold foods.  This 9 year old girl, who was 7 when her sickness began, was left to suffer for 18 months that which was solvable with money in three days. This is in violation of The Human Right’s Act (1998), that which determines quality of life, and health and safety as an equal human right to access freely. I ask the question, was this CHILD safe in the hands of NHS staff, those who attempted to gaslight the family into believing there was no legitimate cause to the long-term, chronic, debilitating ‘illness’ this child was clearly suffering from? Should NHS staff admit to reality rather than cover it up with lies, deceitful misdiagnoses, and unethical practice? Should they simply start telling people, ‘The NHS is dangerous these days, go private if you can’? Similarly, those with chronic fatigue, well, how many really have vitamin deficiencies that could be resolved with high-dosage vitamin therapy? How many are left on waiting lists and decline further than they need to and so suffer a slower, more painful, or stunted recovery? How many physical health conditions manifest from trauma? How many patients never reach recovery? How many children, teenagers, elderly people, or the unfortunately unemployed, must struggle perpetually unless they access private healthcare? Do you have a different story, that of criminal medical neglect or mistreatment under NHS services? Did you find success with something as simple as nutrition plans, high-dosage vitamin therapy, acupuncture or private physical therapy? Let us shame the services with the truth, that they are outdated, running on ego and arrogance, and negligent as heck, by collecting our stories in anthologies to be published by Faith in Change Publishing.

SC.DataCollection@AnaMaria.Org – for Social Care related correspondence.

My father is 71 years old and he attends the gym 4-5 times a week, he lives in social housing and is on a government pension. In 2023 the government cut free gym memberships for pensioners. My dad’s health and social-care lifeline was cut off instantly. I was very proud of my him when he chose to write to the mayor, whose representative sent back this letter (click here). My father’s quality of life has been diminished, the chances of him ending up another burden on the NHS have increased dramatically, which is something he highlighted to the mayor’s office too. All that was returned to his inbox was the well prepared cut and paste list of excuses, like covid, and other funding streams nonsense. My dad is elderly, trying his best to stay healthy and alive, and my country’s politicians have worsened his chances at that dream remaining his reality. If I could pay for his gym, I would, but I too am stuck on benefits because of the constant PTSD recovery struggles that I endure and live with, and the recent refusal for further treatment that I experienced under The NHS Mental Health branch of all this high-brow, knowingly inflicted suffering on the poorest and most vulnerable. I consistently struggle to access anything in the community that suits my individual complex medical recovery needs, if you do too, know you are not alone. Copy us into your emails, not that there are many people to send them to when you are trying to access housing, grants, community arts projects, or even small yoga and movement groups that aren’t run online.

CA.DataCollection@AnaMaria.Org – for Carer related correspondence.

Then we have the carers, the beautiful ones asked to become something not one of them ever saw coming. Carers know what I know. I feel that carers see it all, witness the horrific consequences of unsafe discharges and untreated psychotic illness, of emails unanswered and complaints leading to nowhere. Do use the other email addresses where you can, us carers will come second in this fight, it is to be expected, mostly because we must record the crimes against our loved ones before the crimes committed against our own health and welfare even have a chance of being heard in a parliamentary setting or court of law. Presently, we get that shoddy ‘Care Act Assessment’, I’ve had 3 or 4, all led to nothing of consequence. Should you be experiencing your own decline as a result of becoming a carer, please copy us into relevant emails with this address. If you attempt to get grants or funding, copy us in, if you write to anyone about your welfare and healthcare, specifically, copy us in. For the time being, carers are even more invisible than the patients they care for, they survive all without training, support, or an end in sight. Let’s change that too, slowly, deliberately, the same way you will be journeying as a carer.

Justice.DataCollection@AnaMaria.Org – for correspondence related to anything major we may have missed.

Some of you will have lived or are living different stories to me, I trust that you know where justice has been mismanaged or left unattended because of government red tape. Should you experience that red tape protects those in the systems instead of those reliant on the systems, do send over your stories with the intent of sprouting a new branch to this very legal and professional collective vendetta. Let us take our culprits down the only way that I know how, with logic, reason, evidence, and a relentless push for fair, ethical and reasonable outcomes.

PW.DataCollection@AnaMaria.Org – for Professional Witness statements.

It was a story told to me one day, of daily planned unsafe discharges occurring at 4pm like clockwork from an acute mental health inpatient ward. This permissible negligence was planned because ‘they needed to clear a bed.’ The woman who told me worked at Mind Mental Health Charity, the woman who told her witnessed it as a professional employed by an NHS Foundation Trust. Let stories like this be formally heard, please, dear good-natured and well-intended professionals, we will stand beside you too. That very same unit was reported to have discharged another family’s loved one unsafely, only three days after promising a comprehensive diagnosis and treatment plan to family members in the first and only ward round they attended. They got a call from their loved one who simply said, ‘I got out.’ They were devastated. That human being was left to suffer for another 16 months before they were admitted for safeguarding and treatment again. They nearly died many times in the absence of inpatient treatment and care, not to mention them becoming severely disabled as a result of being left with untreated and constantly active schizophrenia in the community for a devastatingly negligent and damaging amount of time. This happens daily, I have sat in carer’s groups, which only reveal that everybody who is trying to care for a person who is severely unwell is left to do that alone, and fall simultaneously as they do. Carers are impacted greatly by too much responsibility, they are left to caretake in place of inpatient treatment provision, and they are failing to do the job well. Being a carer is not akin to inpatient treatment, nor should it ever be expected to be. Furthermore, community treatment pathways are an inappropriate and negligent provision to offer patient’s with complex treatment needs, this MUST stop being used as a band aid on the collective and societal internal wounds that result in many dying prematurely and which prevent too many from ever getting well. Avoidable deaths and uninterrupted declines are what we highlight, and we hope that professionals speak out too. Another nurse I sat talking to in the gym once spoke of feeling saddened at seeing those she helped to discharge safely, those in a form of stable mental health recovery, deteriorating rapidly in the community swiftly after discharge and dying at a young age. Moreover, an NHS consultant who refused me further treatment last year remarked that they ‘…tend to only give treatment once’, which is of course not the case for cancer patients, or those with a heart condition, or those with enough money to go private. I’d be keen to hear this professional view debated upon, that mental health treatment is ‘only needed once’, especially with private practitioners who do not refuse treatment based on time and money. I’d like the consultant in question to be invited to defend his stance too. How many have been refused the treatment they need based on this unfounded mindset and personal opinion? PROFESSIONAL VOICES CAN REVEAL SO MUCH OF THE TRUTH IF ONLY THOSE WHO NEED TO SPEAK, DO. The law stipulates that mental health must be treated under the same paradigms as physical health. The invisible nature of mental health makes it easy for consultants and their co-workers to lie. Even when reality is recorded in photographs and that mental health becomes visible, they still ignore the needs of those relying on them for efficient, effective, life-saving treatment pathways. We hope to find out why one day. Many good people exist in the system, I implore you to speak up if you are one of them. Tell the untold stories for the patients who were let down, who lost hope and gave up, those you’ll never see again. Tell your stories anonymously here and condemn those worthy of the public shame and humiliation that should and must follow. Let the new reporters get their hands on this aspect, let us shout and keep shouting until invisible cries are heard indefinitely. You are not at risk of exposure, set up an anonymous email address and change the names of everything and everyone if you need to, just tell the stories that need telling, of the racist consultant, of those sickened by the diagnosis of addiction, of those planning the regular 4pm discharges from inpatient care… tell the truth, the whole truth, and nothing but the truth, so help you and those in need.

Why Data Collection?

There is a story lived by millions, be they a carer or a patient left to perpetually decline and suffer as a result of ineffective government service provision and care. Oftentimes, wholistic, well-planned and implemented treatment is denied as the route back to health for many, especially where addiction is a part of a medley of co-occuring disorders. One day, addiction will be defined in the same way as any other degenerative disease or mental disorder, that day will be when science tells the story (read more to learn more); it will also be the day when stigma, prejudice and bias no longer permit the medical abandonment of an entire suffering demographic all because the world has not grown out of ignorance and into medically sound and reliable research-driven practice. Should this be an official crime we determine The NHS as having already committed? 

When you are seated before an underqualified, ill-intended consultant or nurse, and you or a loved one have been forced to become a victim of their incompetence and ill-intent, then you wonder what the consequences to their actions will be without you driving vindication for yourself. I have called Mental Health lawyers who only take cases they know they can win, mostly they work in the black and white of the system, not in the grey of real life deterioration caused by an unsafe discharge.

Unsafe discharges happen every single day from inpatient mental health facilities, rumour has it that one consultant in an NHS mental health Foundation Trust discharges a patient at 4pm everyday, no matter what, because they need to free up a bed. So, instead of patients being forwarded and transferred to specialised inpatient treatment centres, they are sent back out into the community without a diagnosis, treatment, or a chance in hell of surviving their mental health crisis. Some are discharged without medication or even a safe place to sleep. Crime, after crime, after crime, is what I have witnessed, and having sat down with the carers in the community, it can be said, without hesitation or question, that this experience has been normalised by staff in the NHS and the resulting consequence is a sinful waste of precious life.

Our country’s most vulnerable, those truly unable to fend for themselves, feed themselves, wash and keep themselves clean with consistency or a modicum of self-respect, have been left invisible and without a voice. Those who love them are silenced by red tape too, carers are forced to become complaint makers, chasers of the illusive dream of ‘effective treatment into a form of recovery’, aka – A SAFE DISCHARGE. 

I have audio recorded two meetings, one with a consultant promising to provide treatment and a thorough diagnosis, then I have the paperwork revealing the unsafe discharge that occurred only three days later. The second recording is of the manager of a psychosis rehabilitation facility, wherein she admits to zero progress being made, she comments on patient reluctance to engage; when questioned, she has no sound medical dialogue pouring out of her mouth, only foul, ill-seeded, heartless intent. She discharged my loved one into a state of instant decline. 

Out of determination to save their life, we monitored everything closely, sent daily reports (terrifying ones), and they were recalled into hospital only 13 days later, but without a bed they were left unsafe in the community for three weeks (my then 61 year old mother slept in her car with the heating on, intermittently, for fear for her child’s life. It was a harsh, cold December. I knuckled down with the paperwork). At that time, I had just been discharged from my own treatment pathway, that of 16 months of Art Therapy with the NHS, it was supposed to be my precious recovery time. My loved one was supposed to be safe and getting well, not thrown back out and into the hands of the three people still barely stepping forwards out of this shared, hellish, unending nightmare.

When I felt the fall was imminent, that I was struggling to maintain what small progress had been made, I contacted my old therapist from The NHS Foundation Trust. In response, I received a reminder that safety was found within, in a memory that I had worked with, and given the general, standardised list of telephone numbers I could call. I once called The Samaritans, after 45 minutes on hold (I was in despair), I angrily hung up. I went to Mind, attended the death-by-PowerPoint recovery college. I sought 1:1 support from them once too, they were going to give me 8 sessions of counselling. I missed the first session due to physical illness. When the second session was scheduled I was at A&E managing another crisis, they discharged me that day in an email.

The point being made is that legislation is in place to protect the most vulnerable, but that only works when the medical professionals and social care teams step up beside their patients and intend LEGISLATED OUTCOMES for them. Systems are failing, yes, we all know that, but are we, in full awareness, permitting medical and social care staff to shirk their professional duty of care by accepting the list of negligence-permitting excuses? (There are no excuses by the way, the law is the law). Are we accepting common illegal practice by creating a climate of accepted institutionalised negligence? Should professionals create space to accept that they cannot save everyone, but that they must save those already admitted to their care, namely, because the law says they must? When government employees are able to be charged with criminal conduct perhaps this madness will end, perhaps then they will follow the letter of the law.

Professionals tell patients they have limited resources, that they cannot offer further intervention and treatment, they will even go so far as to tell you that you are ready and in recovery already and that you do not need more treatment, just to get you to shut up and leave them alone (whatever makes you disappear and gives them a sound sleep, right?). This is called gaslighting by the way, a form of psychological abuse – the denial of reality is an abuse, let’s name it for what it is. Too many professionals offer excuse after excuse, instead of openness and honesty. I’d rather the truth, that they are choosing not to help me because the systems are functioning unethically and therefore, illegally.

The worst offence of a high volume of NHS professionals is not responding to emails at all. That happens daily and to countless carers who have incredibly unwell loved ones. It is a shameful decision to choose to ignore people watching their loved ones inch closer and closer to their graves. I witnessed three unsafe discharges. The fourth admittance, after those frightening 3 weeks, required force of a new kind. You see, we could not afford to ‘lawyer up’, so I became one over the years, albeit without the degree or the power of the professional label. I’ll tell you what else I did, I recorded every single negligent, prejudice moment in a letter, first to lead consultants, then as the years went on, to Medical Directors, Chief Executives and the local MP. It is only at that level that we saw any motion towards lawful treatment outcomes, but that still took time, over a year in fact.

However, and it’s a big one, these are the words that I wrote to get to the ultimate destination of semi-appropriate dual-diagnosis inpatient treatment for a loved one, and I paraphrase to avoid returning to an inbox full of psychological triggers, ‘Should a fourth unsafe discharge be planned for and actioned by an NHS Mental Health Foundation Trust, then I will take these matters to the media, and that includes the likes of The BBC and popular national newspapers. I will also reach out to the likes of Russel Brand, a famous advocate for addiction treatment and recovery reform. Please know that I do not make threats today, these are promises, which I feel certain you are all aware of by now. I am simply informing you of the predictable consequences to a fourth unsafe discharge from NHS inpatient mental health services.’

We ended up with a referral to a half-decent inpatient treatment centre, I say ‘half-decent’ because dual-diagnosis is a complex, specialist treatment pathway, one that does not yet formally exist in NHS services. To treat one part of the patient and neglect another is by definition, negligence, and it is a common negligence that goes unpunished and leaves patients vulnerable to recurring unsuccessful discharge and recovery plans. Social care is shoddy and underwhelming at best, there is NO recovery support in the community that is safe, reliable and super-long-term. There are also those sitting in limbo, not quite bad enough in their presentation to get real help, yet not well enough to access and utilise what little may be on offer. Many who sit in need of treatment are sent to half-baked recovery routes, like Mind Recovery College, a place full of people who would be better served by 1:1 treatment pathways.

When did Mind, a charity, become the national go to for medical mental health treatment referrals?

Whose fault is it but the government’s? I cannot blame every professional, some are the angels you seek and need. For the most part, I blame the lawmakers who do not provide the equipment, staff and resources, who refuse to fund the truly innovative and progressive treatment pathways we are all deserving of and owed BY LAW! An immediate public ethical body must be formed! Let’s face it, outdated treatments, prejudice-ridden, bias conceptual medical mindsets, and ‘unlikely-to-succeed’ treatment delivery is unethical, and thus breaches the main pillar of medical practice.

Justice will be served at the feet of those deserving of it, but we must prove this unreported mess of a collective criminal act together. Then let us travel slowly to the destination of the doors of those responsible… let us find the culprits and see that punishments are served fresh and hot. I want to see job losses, imprisonment, parliamentary inquiries, the forming of medical policing bodies, and discharge tribunals, wherein consultants and responsible clinicians must justify their choice to discharge. Evaluating their subjective decision must become an instilled good and safe practice… I feel certain others have great ideas too.

Let DEMOCRACY prove itself, one step at a time. Petitions and this data collection project are all we have right now, let us grow in time; let news reporters, the true kind, those who would be murdered for speaking the truth in other cases, that kind, join us; let the lawyers wanting to get their teeth stuck into a really gritty, game-changing series of cases step up; let the survivors find their footing and their voices, as well as vindication and justice. Let us plough onwards without knowing exactly what the result is. Let the love we have for those who are still unwell, be that love for ourselves or another, as well as our love for those who were already the victim of the systems and services, those who have already perished, be spoken for too. Let your rage join my own and let us kick some proverbial butt! 

Standing side by side we can know that we are not alone and the pain wasn’t for nothing.

I saw a gap in the services, help me continue to attempt to fill it.

Having walked through mental health service provision myself, having two family members reliant on that aid, I sit petrified. There is no community recovery support, none that is safe, wholistic, systematic or effective. There is no route out of hell… but I refuse to live in hell forever, for I have tasted the edges of heaven in my previous life and I live on the hope of rediscovering a life outside of full-time familial advocating and caring (I lost my capacity to work when I took on the role). And so, I continue to battle my way out because I have not the money to access the things that I need to get well. The poverty line is where I live, it is not easy, it is not conducive to full recovery, but I muddle onwards. Until change comes, I hope for everything that I work on to serve those in the invisible spaces I have visited and continue to survive.

RECOVERY FOUNDATIONS is a PDF guide that may help those in pre-recovery and early recovery formation. It is an accumulation of everything that I have learned and used to survive and navigate hell. When the National Gatekeepers to health and wellness, aka, the NHS, refuse to support you along a legitimate path back to health, where is one left to find hope? Here at anamaria.org, I pray becomes the answer to that question. Hell is alive, it is not a place that waits for the dead, Hell is here in The UK, those living in it know as much to be true. Let us make hell visible to those who need to see it for themselves to believe it.

Should you want to donate, please read more here. It is only with a little money from many people that we will ever see all of this into fruition. Should it be a lifetime before my job is done, so be it. But with your help we can speed it all up, for money is indeed power, and we need some power behind us here. Patrons are also welcome, as are any public figures who deem the cause as vital, worthy and honourable.

• Link to Instagram feed.
• Link to Facebook feed.
• Link to Twitter feed.
• Link to Pinterest.
• Link to Goodreads
• Click here for Linked In.
• Link to YouTube channel.
• Link to TikTok
• Find Ana Maria on Google Maps.